(PS Kylie loves to give this blog freely, and she’s very grateful to those who chose to come alongside her financially. This gift supports Kylie as she navigates her cancer journey, and invests in her commitment to share Courage, Love and Legacy with those facing their own difficult diagnosis. To become a valued supporter, please consider upgrading to a paid subscription at any time…)'

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(PS Kylie loves to give this blog freely, and she’s very grateful to those who chose to come alongside her financially. This gift supports Kylie as she navigates her cancer journey, and invests in her commitment to share Courage, Love and Legacy with those facing their own difficult diagnosis. To become a valued supporter, please consider upgrading to a paid subscription at any time…)'

Subscribe now

(PS Kylie loves to give this blog freely, and she’s very grateful to those who chose to come alongside her financially. This gift supports Kylie as she navigates her cancer journey, and invests in her commitment to share Courage, Love and Legacy with those facing their own difficult diagnosis. To become a valued supporter, please consider upgrading to a paid subscription at any time…)

Subscribe now

(PS Kylie loves to give this blog freely, and she’s very grateful to those who chose to come alongside her financially. This gift supports Kylie as she navigates her cancer journey, and invests in her commitment to share Courage, Love and Legacy with those facing their own difficult diagnosis. To become a valued supporter, please consider upgrading to a paid subscription at any time…)'

Subscribe now

(PS Kylie loves to give this blog freely, and she’s very grateful to those who chose to come alongside her financially. This gift supports Kylie as she navigates her cancer journey, and invests in her commitment to share Courage, Love and Legacy with those facing their own difficult diagnosis. To become a valued supporter, please consider upgrading to a paid subscription at any time…)

Subscribe now

(PS Kylie loves to give this blog freely, and she’s very grateful to those who chose to come alongside her financially. This gift supports Kylie as she navigates her cancer journey, and invests in her commitment to share Courage, Love and Legacy with those facing their own difficult diagnosis. To become a valued supporter, please consider upgrading to a paid subscription at any time…)

Subscribe now

(PS Kylie loves to give this blog freely, and she’s very grateful to those who chose to come alongside her financially. This gift supports Kylie as she navigates her cancer journey, and invests in her commitment to share Courage, Love and Legacy with those facing their own difficult diagnosis. To become a valued supporter, please consider upgrading to a paid subscription at any time…)

Subscribe now

(PS Kylie loves to give this blog freely, and she’s very grateful to those who chose to come alongside her financially. This gift supports Kylie as she navigates her cancer journey, and invests in her commitment to share Courage, Love and Legacy with those facing their own difficult diagnosis. To become a valued supporter, please consider upgrading to a paid subscription at any time…)

Subscribe now

already and for my NZ community, this will give fresh insight into life on a clinical trial.

The short videos are packed with personal stories and reflection of the highs and lows over the last 10 months of treatment and are relevant to anyone who is on or supporting someone through a health journey. I hope you enjoy watching them and that they bless you with courage, love and legacy.

In this first video you can join me for breakfast as I talk about "What is it like to be on a clinical trial?" We'll discuss the benefits, the challenges, the monitoring and care that comes with this type of treatment.

Update?

For those wondering about my bone marrow biopsy & results, a brief update: I had the biopsy on the 9th Dec (which went very smoothly) and am still waiting on the results of this. When I get the news, I will update you all too. In the meantime, thank you for your prayers; I’m content in the waiting.

Listen on Apple | Get Parents We've Met on Apple Podcasts

Listen on rova | Find Parents We've Met on rova

It was such a privilege to be invited to share my journey of diagnosis, parenting and Courage, Love and Legacy on the “Parents We’ve Met” podcast. Parenting Place is all about helping build confident parents so that children feel deeply loved. I’ve been friends with Dayna, one of the hosts, since we were teens and I love everything she stands for. When she asked if I was interested in sharing my story with her, I had no hesitation in saying “yes.” There are so many parents who find themselves suddenly diagnosed with cancer and forced to navigate such unexpected and challenging circumstances, so it’s an honor to extend my hand to them, offering a piece of the hope I hold.

This is a raw, real and precious conversation that hopefully reminds us to take time to reflect on what’s important, what values we want our families to be known for and how we want to be remembered.

Despite the franticness of this festive season, I’d encourage you to take a little time to sit with this podcast (& maybe some tissues handy) and use it as an inspiration to, if needed, adjust your priorities so that you’re saying “yes” to what’s most important to you and your family this Christmas.

Be blessed & Merry Christmas; may your days be filled with fun and fellowship with your friends and whānau (family).

Kylie

This means, my heart to journey alongside other’s with cancer, encouraging, inspiring and sharing deep, meaningful and real stories from this walk we’re on, has just enlarged in an amazing and profound way. At first, I found the video-logs intimidating and it really hard to find the words; I’m usually someone who likes to avoid being in-front of a camera (I’m far more comfortable with wearing the producer’s hat!), but as I’ve warmed up to it and found encouragement and support from the team at Patient Power, I can really feel the value of putting a face to my thoughts and connecting at an even more personal level with people. It’s taken massive amounts of courage, but that’s what I’ve sworn to live by right?

And I’d like to welcome all our new subscribers; it really is an honor to have you join this journey of Courage, Love and Legacy with me. My blog posts come out about every 3 to 4 weeks. I don’t ever want to overwhelm your inbox, so I like to send emails with enough space between them that you can savour the thoughts and ideas I share and take time to reflect on how they might resonate in your own life. Courage, Love and Legacy is not just for people with CLL, it started out as updates to my home community, and is now read by people with other types of cancer, their care givers, friends, family. If you find it encouraging, you’re welcome to share it with others who are walking the journey with you. My biggest hope and encouragement (which you’ll find threaded through most of my posts) is that you have or find someone to share deeply and be vulnerable with. It definitely makes any difficult journey a little easier to bear.

So without further adieu… here’s a link to the first one of our video post-card series… and I’ll continue to post links to these additional videos, along with my regular written blogs.

A Young Mom Confronts “Skyrocketing White Blood Cell Counts”

Exploring Courage, Love and Legacy

Also if you’re new here, feel free to explore my homepage where you’ll find a selection of posts grouped into various, hopefully helpful, themes - recent posts, the first few days, family and cancer, watch and wait and faith and cancer.

To help you out, I’ve curated a selection below that will fast-forward you through my journey over the last 22 months. Hopefully you find one or two stories and reflections that resonate with where you’ve found yourself on your own journey…

May we all be blessed with a life of Courage, Love and Legacy

Kylie