"Scanxiety", the feeling of growing anxiety as the date of a medical test draws near, has a tendency to encroach on my peace if I'm not diligent about tending to my internal well-being.
Kiley thank you for your honesty. I have certainly gace this fear if results, scans , xrays, tests etc. As usual I will be praying for you and especially just before Chritmas that the results are excellent.
Thanks Jill, I think the tests & then the waiting for results is often the hardest part because we just don't know. Once we do know, we can work with what we've got... the in-between is where the real wrestle is, as so many of us experience. Thanks for your prayers! I'm certainly holding onto hope for good results. Merry Christmas season - may it be filled with wonderful fellowship with family and friends.
Dear Kiley, wishing you the very best FOLLOWUP w/many years of continued success & a wonderfully long life of love & happiness for your entire family. My journey is similar… I fully appreciate & understand.🧡
Thanks so much Sheryl, I'm hoping for really positive results, certainly at the start of treatment there was such rapid improvement, which was wonderful. Long may it continue.
Thank you Kiley for giving me something to go by as I started the same treatment… Due to high Uric Acid levels, the Venetoclex is on hold. I did have the horrible reaction to my first Obi Infusion. I was DX’d w/CLL in my late 40’s… Didn’t need treatment until Indolent turned to very Aggressive. Thank you for such a well organized & beautifully written journey. Wishing you & your lovely family all the best🤗🧡
Thanks Sheryl, I'm sorry to hear you're facing some complications with the start of V&O treatment. Praying your journey on it gets better and you get really positive results from it. I think it can work really well for people once they get past that initial system shock. May your days be blessed with peace and hope, and courage!! x
The Obi is working well… As of my appt. & treatment yesterday, we will not be using the Venetoclex at all. My Hem-Onc believes in my case, the Obi should be sufficient… I was ecstatic to hear this. In the meantime, my veins/access are becoming an issue…However, I’m staying positive…
I thank you for all your support & best wishes. Hoping that we both have excellent news to continue to share. I support & appreciate you, Kiley.🧡
That's great news. Obi worked so well for me, that I sometimes wondered why the combo is needed ... so good you can have that as an option. Hope your veins hang in there - there is a lot of needles with treatment!
This is so beautiful Kylie. Courage only exposes itself in the face of fear. I know this is an old fashioned word, but one word I feel describes you is noble. You have such nobility about you. You carry your strength and your frailties and responsibilities and spirituality and humanity like the most beautiful royal cloak. ❤️ Thank you so much for sharing your journey with us. I'll continue to pray for you, sweet friend. Xx
Kiley thank you for your honesty. I have certainly gace this fear if results, scans , xrays, tests etc. As usual I will be praying for you and especially just before Chritmas that the results are excellent.
Love Jill
Thanks Jill, I think the tests & then the waiting for results is often the hardest part because we just don't know. Once we do know, we can work with what we've got... the in-between is where the real wrestle is, as so many of us experience. Thanks for your prayers! I'm certainly holding onto hope for good results. Merry Christmas season - may it be filled with wonderful fellowship with family and friends.
Dear Kiley, wishing you the very best FOLLOWUP w/many years of continued success & a wonderfully long life of love & happiness for your entire family. My journey is similar… I fully appreciate & understand.🧡
Thanks so much Sheryl, I'm hoping for really positive results, certainly at the start of treatment there was such rapid improvement, which was wonderful. Long may it continue.
Thank you Kiley for giving me something to go by as I started the same treatment… Due to high Uric Acid levels, the Venetoclex is on hold. I did have the horrible reaction to my first Obi Infusion. I was DX’d w/CLL in my late 40’s… Didn’t need treatment until Indolent turned to very Aggressive. Thank you for such a well organized & beautifully written journey. Wishing you & your lovely family all the best🤗🧡
Thanks Sheryl, I'm sorry to hear you're facing some complications with the start of V&O treatment. Praying your journey on it gets better and you get really positive results from it. I think it can work really well for people once they get past that initial system shock. May your days be blessed with peace and hope, and courage!! x
The Obi is working well… As of my appt. & treatment yesterday, we will not be using the Venetoclex at all. My Hem-Onc believes in my case, the Obi should be sufficient… I was ecstatic to hear this. In the meantime, my veins/access are becoming an issue…However, I’m staying positive…
I thank you for all your support & best wishes. Hoping that we both have excellent news to continue to share. I support & appreciate you, Kiley.🧡
That's great news. Obi worked so well for me, that I sometimes wondered why the combo is needed ... so good you can have that as an option. Hope your veins hang in there - there is a lot of needles with treatment!
This is so beautiful Kylie. Courage only exposes itself in the face of fear. I know this is an old fashioned word, but one word I feel describes you is noble. You have such nobility about you. You carry your strength and your frailties and responsibilities and spirituality and humanity like the most beautiful royal cloak. ❤️ Thank you so much for sharing your journey with us. I'll continue to pray for you, sweet friend. Xx
Thank you so much Dusty - such a profound word actually; I'm very humbled and appreciative of your continued love and encouragement xx
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